New on the bookshelf

In the last year two new but very different books have appeared which add much support to the advancement of CHILD’s goals. The most recent is Bad Faith by Dr. Paul Offit (2015). A renowned pediatrician working at the Children’s Hospital of Philadelphia, Dr. Offit has seen firsthand the tragedy of children sacrificed at the altar of intransigent religious belief opposed to medical care. The Child Cases by Alan Rogers (2014) comes at the topic from a different angle. As a law professor at Boston College Dr. Rogers rigorously details the legislative and legal history of how the numerous religious exemption laws around the country came to be, how they endanger children, and why they should be repealed. Both books are exceedingly worthy of your attention.

Bad Faith book


BAD FAITH

When Religious Belief
Undermines
Modern Medicine

by
Paul A. Offit, M.D.

Basic Books, 2015


Medical Miracles

by William Bynum
Reprinted with author’s permission from The Wall Street Journal, April 12, 2015

     The Victorian polymath Francis Galton (1822-1911) loved measuring things. He examined weather patterns, looked at the relationships between the physical characteristics of parents and their offspring, and worked out the unique patterns in fingerprints. He also wondered if prayer could lead to long life. He reasoned that clergymen pray more than other people and that one of the things they pray for is health and longevity. Consequently, if prayer is answered, clergymen ought to live longer. But when he compared the mortality statistics of clergymen with those of doctors, lawyers and others in similar socioeconomic circumstances, he found no difference.

     Paul Offit doesn’t mention Galton’s tongue-in-cheek experiment in “Bad Faith,” but he forcefully demonstrates that the children of people in faith-healing groups have higher mortality rates than those whose parents have their children vaccinated and seek medical help when they fall ill. Dr. Offit, a pediatrician at the University of Pennsylvania School of Medicine, is primarily concerned with the health of children who are the victims of their parents’ misplaced faith.

     Dr. Offit has no problem with religion: Indeed, he insists that it is also the hero of his tale of neglect and premature, unnecessary death. He knows his Scripture, his Jewish doctrine and his theology. Good faith is good, bad faith is bad. And, to his medical eyes, the bad faiths are those that either deny the existence of disease (Christian Scientists) or believe that when disease strikes it is a sign of sin or failing and therefore properly “cured” by prayer and repentance. His volume is a catalog of tragedies, some from his own practice, most from the public record, that need not have happened. For him, the old Puritan mantra of praising the Lord but keeping your powder dry is the sensible way.

     Most of Dr. Offit’s analysis is devoted to Christian sects, of which Christian Science is merely one. Thus the Faith Tabernacle Congregation in Philadelphia, the Faith Temple Church of Apostolic Faith in Milwaukee and other individual congregations, as well as larger groups such as Jehovah’s Witnesses and Seventh-Day Adventists, all receive Dr. Offit’s attention. The stories are depressing: children with diabetes who are required to abandon their insulin for prayer, children with bacterial meningitis prayed for but not sent to the hospital for antibiotics, hemophiliacs not receiving their blood transfusions, children exposed to lethal measles because they are unvaccinated. Sometimes the “therapy” is more aggressive: Terrance Cottrell Jr., an 8-year-old boy with autism, died of asphyxiation in August 2003 while being exorcised for his condition by the pastor of the Faith Temple Church.

     Although fundamentalist Protestant groups get the most attention, Dr. Offit does not confine himself to them. He recounts a horrifying story from 2009 of a 27-year-old mother of four, 11 weeks pregnant with a failing heart exacerbated by her pregnancy. Sister Margaret Mary McBride, director of the ethics board in a Roman Catholic hospital in Phoenix, allowed the woman to have her pregnancy terminated. To withhold consent would have been to orphan four living children, and the pregnancy would not have resulted in a live birth had the mother survived. For her decision, Sister McBride was excommunicated (though she was later reinstated), and the hospital chapel denied the right to celebrate Mass.

     On a lighter note, Dr. Offit doubts the reality of faith healing at Lourdes, but he accepts that pilgrims generally come away feeling better. The shrine is also good for the local economy in southwest France.

     Most medical evidence suggests that circumcision has positive benefits, both for the male and for his sexual partners. A Jewish ritual, metzitzah b’peh, dictates that the officiating rabbi suck the blood from the infant’s wound with his mouth. The procedure can and has spread syphilis and, more commonly, herpes to the infant. The ritual is practiced about 3,600 times each year in New York City. Because in this context it is a religious ritual, not a medical procedure, some Jewish doctors nevertheless defend it, despite its risks.

     Given this catalog of wastage, what is to be done? Dr. Offit has far too much respect for religious belief and practice to suggest, like some aggressive atheists, that the world would be better off without its religions. Freedom of religion is of fundamental importance to the fabric of American life. Consequently, he sees hope in the law. Parents should not be able legally to deny their children proper medical care. Much of the last part of “Bad Faith” is about this issue. Richard Nixon’s Watergate henchmen Bob Haldeman and John Ehrlichman (both Christian Scientists) managed to smuggle a religious-belief exemption into child-protection legislation in the 1970s, Dr. Offit recounts, and the consequences continue to surface. The pediatrician in Dr. Offit simply wants better legal protection for his patients.

     A second way forward is for individual changes of heart. The heroine of this powerful book is Rita Swan, a former Christian Scientist who watched her son sicken with a bacterial meningitis as she, her husband and fellow Christian Scientists prayed. She had already fallen afoul of her church for having an emergency gynecological operation, which saved her life, and when her son Matthew was at death’s door, she again broke ranks and took him, too late, to a hospital. Five years after Matthew’s death in 1977, she and her husband founded a child protection organization (Child Healthcare Is a Legal Duty) that has continued to work toward protecting children from religiously motivated medical neglect. Like many contentious issues, and any that involve the courts, this one is unlikely to disappear in the near future and certainly not before many more children will needlessly die.

     Mr. Bynum is the author, with Helen Bynum, of “Remarkable Plants That Shape Our World.”

Other notable reviews of Bad Faith:
The New York Times Review of Books
NBC News

Child Cases book


THE CHILD CASES

How America’s Religious
Exemption Laws Harm Children

by
Alan Rogers

University of Mass. Press, 2014


Religion-based medical neglect in court & statehouse

by Rita Swan
Reprinted from CHILD Newsletter 2014, Vol. 2

     Alan Rogers’ new book is a careful and valuable record of seven prosecutions of Christian Science parents who let their children die without medical care in the 1980s and of child advocates’ work to repeal religious exemption laws enacted by Christian Science lobbying. Rogers is a history professor at Boston College and teaches courses on the history of church-state law. His training and experience with legal issues inform the book richly.

Religious exemptions erode rule of law

     The book argues succinctly “that a child’s death rationalized by a potentially harmful religious practice erodes commitment to the rule of law. In a well-ordered society the law must protect all persons. When the law permits a child to die at the hand of another, that act undermines the public good and strips the child of the right to equal treatment before the law.”

     Rogers has chapters on the trials for the deaths of Amy Hermanson, Shauntay Walker, Ian Glaser, Natalie Rippberger, Ian Lundman, Ashley King, and Robyn Twitchell. His accounts have poignant and dramatic details about the families and accurate information about the court battles.

Both parents and church arrogant

     They begin with a vivid picture of the outrageous behavior of the Hermansons two days after seven-year-old Amy died of untreated diabetes. The parents called meetings of neighbors and work associates to explain their religious beliefs, claim they had provided treatment recognized as appropriate in Florida law, and offer their listeners church literature. Later Mrs. Hermanson told a friend that Christian Science had healed Amy, but then Amy made her own choice to pass on.

     The parents’ arrogance enraged some, but it was certainly part and parcel of their church’s attitude, which relentlessly promotes its spiritual treatments as a health care system and took out a full-page ad in the local newspaper trumpeting its record of healings and pointing out that diabetic children have died under medical care.

     The Hermansons’ attitude pales in comparison to that of Catherine King, who seemed almost deliberately cruel while her daughter Ashley was dying of bone cancer.

“Super-good day” for toddler

     Robyn Twitchell’s parents were much more sympathetic figures, but the toddler’s church practitioner Nancy Calkins was either delusional or a consummate liar. Over five days Robyn intermittently screamed and vomited as he suffered with a bowel obstruction and peritonitis. Calkins, however, testified that she achieved a complete healing of Robyn and he ran around the room happily chasing his kitty cat but then suddenly climbed in his father’s lap and died. She suspected the world’s hatred and jealousy of Christian Science was the cause of his death. As Rogers writes,

“Calkins said Robyn had ‘ups and downs’ during his five-day illness, but on Tuesday ‘he had a super good day.’ ‘Mrs. Calkins,’ [the prosecutor] said, ‘he died Tuesday.’ ‘I know he did’ she said, ‘but he had a super good day.’”

     The church retained both a political consulting firm and an advertising agency to deal with the publicity
generated by the criminal trial in the shadow of its international headquarters in Boston. These
expenditures did not win friends. Many locals, Rogers writes, “perceived the church as hierarchical,
secretive, coldly ideological, and more concerned with defending itself than with saving a child’s life.” Hundreds of potential jurors had to be dismissed because they had already made up their minds against the Twitchells.

Massachusetts battle described in detail

     Furthermore, a large coalition of Massachusetts child advocates succeeded in repealing the state’s religious defense to criminal non-support.

     Rogers’ detailed account of these child advocates’ five-year struggle is an enormously valuable historical record. The twists and turns and frustrations of legislative work are laid out. The patience and persistence, the leadership and strategizing of CHILD members Jetta Bernier, Ken Casanova, and John Kiernan are described, though Ken’s work is much more extensive than Rogers acknowledges.

     The book, published this year, does not mention our work in Oregon or any of our legislative work after 2001. We wish it had covered Ellen Mugmon’s repeal work in Maryland, which also took patience, persistence, and strategy, and was not as “quick” as Rogers claims.

     Nevertheless, the book mounts a very strong argument against religious exemptions from child health and safety laws and the legislators who enact them.

     “Historical evidence and the Supreme Court’s major free exercise decisions,” Rogers concludes, demonstrate “that the rule of law applies equally to religious groups and to all others. . . . When legislators succumb to Christian Science lobbyists who advocate a special religious interest or who privilege harmful religious conduct, they are guilty of undermining the very religious freedom they claim to be protecting.”

     Rita Swan is the President and, with her husband Doug Swan, Co-founder of Children’s Healthcare Is a Legal Duty, Inc.


A video interview with Alan Rogers on The Child Cases